If you have had the time to run over my previous musings you will know that I have a condition called Limb-Girdle Muscular Dystrophy. LGMD is the preferred acronym for those of us (ok most of us) that enjoy brevity in our writing (unlike what is shown in this sentence) and does not enjoy the challenge of verbalising each sound as we plonk away at the keyboard attempting to spell really long and complicated medical words correctly; and/or really don't quite understand what each word means as it's such a new concept and therefore hard to recall the full name.

When I talk to people about my condition the most common questions that I receive are related to confusion between other neurological disorders that symptomatically seem to present similarly, their acronym is very similar and the conditions are, generally, more familiar to more people. The most popular being Multiple Sclerosis (MS) and Motor Neurone Disease (MND).