RESOURCES

Look with us, and book with us. Our team also have disabilities or care for a person with a disability. We too have had to search for our unique requirements. We get it!

A nonprofit organisation dedicated to supporting individuals and families affected by neuromuscular conditions. MDA provides essential services, including advocacy, education, research funding, and community programs, to improve quality of life and empower those living with muscular dystrophy. Through initiatives like Camp MDA, support groups, and fundraising campaigns, MDA fosters connection, inclusion, and access to vital resources across Australia.

LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy organization committed to raising global awareness about limb-girdle muscular dystrophy (LGMD), a group of rare and often debilitating neuromuscular diseases. Our mission is strengthened through collaborative efforts with other LGMD foundations, as we unite to provide curated educational resources and support for the LGMD community and the public.

 By amplifying awareness and advocating for those impacted by LGMD, we strive to ensure that individuals facing this progressive condition can more easily navigate the pathways to diagnosis, care, and treatment. A significant highlight of our advocacy is the annual Limb-Girdle Muscular Dystrophy Awareness Day, celebrated on September 30th. This day is a vital platform for spreading knowledge and fostering community engagement.

Together, we can make a difference in the lives of those affected by LGMD!

 “Together We Are Stronger”