For some time, I’ve wanted to write about my experience as a participant of our National Disability Insurance Scheme (NDIS), a scheme established under the management of the National Disability Agency (NDIA). If I had shared my views in 2019, twelve months after I started on the scheme, I would've been full of praise. The NDIS has liberated my life, and that of my informal (unpaid) carer-husband Gary. We have regained to a large extent, the choices of earning, studying, travelling, and pursuing hobbies. I am immensely grateful that I live in this privileged country in which equity (as it relates to many people with disabilities) has been made a high priority.

But I am now acutely aware of how much the original vision and purpose of the NDIS has deteriorated.