Necessity has driven humankind to strategise, design, create and innovate. This need has resulted in contributions, both beneficial, and at times detrimental because we have always strived for ways to fulfil a real or perceived need.

I saw buying my first wheelchair as a pragmatic choice, thinking of my safety, the convenience of those around me and my quality of life; but looking back now, I was not in touch with my true emotions and was harbouring a generous amount of resentment and sadness towards my situation.

The independence brought by being in the driver’s seat is generally unspoken. So what happens when the ability to drive is no longer or has never been available to you due to circumstances out of your control, your disability?

When I talk to people about my condition the most common questions that I receive are related to confusion between other neurological disorders that symptomatically seem to present similarly, their acronym is very similar and the conditions are, generally, more familiar to more people.

Everyone loves it when the mailman arrives – sometimes more than others

There was a time when If I cried “catch me, I’m falling”, it was not because my company had induced a swoon. This isn’t a pass; it is the unfortunate effect of having LGMD. While my ambulatory skills were diminishing, getting up from the ground was one of the first abilities to disappear along with my butt, hip and thigh muscles.

Back in 2015 I’m sure a local Aussie Post delivery worker was happy to know I wasn’t trying out the damsel in distress routine to gain his attentions when he found me soaking up the rays on my friends front lawn one fine sunny day.