The Luckiest People

Being less than able sucks [1]!! Moving through your world with Jacob Marley type chains in the form of mental and physical impairment or disability inarguably makes for a more difficult life.



Those affected do not have a choice – it’s there and we’re living it. 



But what about those by our side, those that help read more...

The Carer Fix – For Those Who Could Care Less

The Compromise.    We tend to mark our lives in stages, arranging our stories into chapters with clear titles which describe large and tangible changes. But the truth is that life is incremental, and now eighteen months on from my March ‘17 blog post on The Luckiest People, Gaz and I have had many small read more...

Carer’s need caring too

My life would be so unimaginably ‘less than’ without my wonderful, supportive, unpaid carer AKA my husband, Gaz, (despite his frustrating and endearing husband like faults) since the symptoms of Limb Girdle Muscular Dystrophy have taken up an unwelcome residency in my body. 



And like millions of unpaid and loving carers around the world he read more...

All That We Are

Imagine a situation where the voluntary action of rising from a seated position is no longer available to you. You now require assistance from others for every activity involving repositioning.



This happened to me very suddenly and very recently, and it has made me think a lot about our lives and who we really are – read more...

Everyone loves it when the mailman arrives …sometimes more than others

Catch me I’m falling! Sorry to tell you this, but when I say “catch me, I’m falling”, it is not because you have induced a swoon. This isn’t a pass; it is the unfortunate effect of having my butt, hip and thigh muscles gradually disappear. And getting up unassisted has not been a move in read more...