LGMD, MD, MS, MND…huh??

Clearing up the acronym confusion If you have had the time to run over my previous musings you will know that I have a condition called Adult Onset Limb Girdle Muscular Dystrophy. LGMD is the preferred acronym for those of us that enjoy brevity in our writing (unlike what is shown in this sentence) and read more...

Me And My Wheelchair Go For a Drive

A Vehicle Modification Story   In the Winter of 2016 Gaz and I became the owners of a Kia Carnival. Not our empty nester vehicle of choice but you can’t have everything. In Spring of that year I became the wheelchair using passenger in the newly accessibly modified vehicle – a Kia Carnival. read more...

When Car Driving Can No Longer Be

Most of us fortunate to be part of the affluent Western world take the act of driving a vehicle for granted. The independence brought by being in the drivers seat is generally unspoken and blanketed by the layers of the very real and conscious logistics related stuff: purpose, traffic conditions, time limits, car repairs, kids read more...

Home Modifications Complete, Part 2 – The Roll In Shower

We really can have an accessible bathroom without forsaking our taste. THE DECISION As I have alluded to before in my post To Wheel, Or Not To Wheel many people who have Limb Girdle Muscular Dystrophy (LGMD) experience genuine fear as a not so medical symptom. Fear and anxious anticipation as you try in vain read more...