LGMD, Disability and Advocacy.

Why doing our bit to highlight diversity is a good thing I was diagnosed with Adult Onset Limb Girdle Muscular Dystrophy in my early 40’s. Until then I had been in the ~82% of non-disabled Australians, and had no direct contact with anyone who was physically challenged by the environment around us.   In the read more...

My LGMD Work-Arounds

Tips and aids to enable my Leanneability, and perhaps yours too. It’s high time that I shared some of the physical aids that help get me through my days as I live with the ever-changing effects of Limb Girdle Muscular Dystrophy (LGMD). To innovate and improvise makes such a difference to the ease of which read more...

LGMD, MD, MS, MND…huh??

Clearing up the acronym confusion If you have had the time to run over my previous musings you will know that I have a condition called Adult Onset Limb Girdle Muscular Dystrophy. LGMD is the preferred acronym for those of us that enjoy brevity in our writing (unlike what is shown in this sentence) and read more...

You Can Travel With A Disability

In the beginning I didn’t always fly, drive and travel with a disability. Hobart airport tarmac, disembarking, May 2012. My first, most visceral disability travel moment. Thighs frenetically, yet weakly quivering, knees begging to stay locked in supporting my uprightness. I pictured my forward plunging body lying, bleeding from every point of bitumen-contact with each read more...