LGMD, MD, MS, MND…huh??

Clearing up the acronym confusion If you have had the time to run over my previous musings you will know that I have a condition called Adult Onset Limb Girdle Muscular Dystrophy. LGMD is the preferred acronym for those of us that enjoy brevity in our writing (unlike what is shown in this sentence) and read more...

When Car Driving Can No Longer Be

Most of us fortunate to be part of the affluent Western world take the act of driving a vehicle for granted. The independence brought by being in the drivers seat is generally unspoken and blanketed by the layers of the very real and conscious logistics related stuff: purpose, traffic conditions, time limits, car repairs, kids read more...

Home Modifications Complete, Part 2 – The Roll In Shower

We really can have an accessible bathroom without forsaking our taste. THE DECISION As I have alluded to before in my post To Wheel, Or Not To Wheel many people who have Limb Girdle Muscular Dystrophy (LGMD) experience genuine fear as a not so medical symptom. Fear and anxious anticipation as you try in vain read more...

Time To Embrace The New Hug

I’m a hugger. I think people fall into two camps when it comes to this oft times public and spontaneous show of affection – you’re either into it or you’re not. This human style of endearment suited me well for the first four and a half decades of my life – I certainly took both read more...