LGMD, MD, MS, MND…huh??

Clearing up the acronym confusion If you have had the time to run over my previous musings you will know that I have a condition called Adult Onset Limb Girdle Muscular Dystrophy. LGMD is the preferred acronym for those of us that enjoy brevity in our writing (unlike what is shown in this sentence) and read more...

Home Modifications Complete, Part 2 – The Roll In Shower

We really can have an accessible bathroom without forsaking our taste. THE DECISION As I have alluded to before in my post To Wheel, Or Not To Wheel many people who have Limb Girdle Muscular Dystrophy (LGMD) experience genuine fear as a not so medical symptom. Fear and anxious anticipation as you try in vain read more...

Time To Embrace The New Hug

I’m a hugger. I think people fall into two camps when it comes to this oft times public and spontaneous show of affection – you’re either into it or you’re not. This human style of endearment suited me well for the first four and a half decades of my life – I certainly took both read more...

What, How, Where, Why of Limb Girdle Muscular Dystrophy

DEFINITION – 



Limb Girdle Muscular Dystrophy is the term given to a large group of rare degenerative muscle wasting conditions. There are many causes due to mutations in various genes and can be diagnosed with protein and genetic analysis. This condition does not seem to be sexist, bigoted or racist and affects people from all around read more...