Disability is about Us. You, and Me.

Hello there, I so appreciate you stopping by my little corner of the internet. Here I share my ordinary, extraordinary life, the first 40 years of which as a woman with no physical limitations and the last 17 as a woman with an increasingly severe physical disability.

Disability is about all of us. I am one of 17.7% of Australians that have a disability and Gary (my guy) is one of the 10.7% unpaid informal carers. Naturally, at least another 40% of Australians will have interactions with someone with a disability. And the remaining one-third have some knowledge of or experience with a disabled person.


I am also in a unique category of only 150,000 Australians with a severe disability and only an estimated 500,000 affected by LGMD worldwide. Yet discrimination and ignorance persist, taking away individual equity, rights, and self-esteem and robbing society of unique contributions and valuable interactions.

We are all on an ability spectrum and most of us aren’t celebrities or Paralympians. I’m an everyday daughter, wife, friend, mother and recent grandmother who is living the second more challenging stage of a charmed life. I want to share my story to help everybody understand what living with a disability is like on an everyday basis to help educate, advocate, to create a more equitable life for the individual and a more accepting, inclusive society.

I'm glad you're with me on this journey towards equity and inclusion.

Sharing my full life with a changed acceptance and perspective thanks to adult-onset Limb Girdle Muscular Dystrophy.

I acknowledge Traditional Owners of Country, including Elders past and present throughout this unceded Australian land. I recognise, respect and commit to learning from the culture and continued connection of the Kulin Nations’ Wadawurrung people to the land, waters, spirit and communities of the Bellarine Peninsula on which I work and live. I share my stories in recognition of the vast Aboriginal legacy of storytelling.

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