Carer’s need caring too

My life would be so unimaginably ‘less than’ without my wonderful, supportive, unpaid carer AKA my husband, Gaz, (despite his frustrating and endearing husband like faults) since the symptoms of Limb Girdle Muscular Dystrophy have taken up an unwelcome residency in my body. 



And like millions of unpaid and loving carers around the world he read more...

It Takes a Village to Create a Quilt

Sometimes it takes a village to create…many outcomes. What does your village look like?. We all want to live independently and be self-reliant, and fortunately, most of us can forever. But even for the healthiest of us, the strong in mind and body, the determined, the driven and the in-between, we all rely on those read more...

LGMD, MD, MS, MND…huh??

Clearing up the acronym confusion If you have had the time to run over my previous musings you will know that I have a condition called Adult Onset Limb Girdle Muscular Dystrophy. LGMD is the preferred acronym for those of us that enjoy brevity in our writing (unlike what is shown in this sentence) and read more...

All That We Are

Imagine a situation where the voluntary action of rising from a seated position is no longer available to you. You now require assistance from others for every activity involving repositioning.



This happened to me very suddenly and very recently, and it has made me think a lot about our lives and who we really are – read more...

Ramping up the mods – it’s a dogs life

IKEA flat packs – so amateur Continuing on from The Only Way Is Up posted May 19 2017 After a few hour delay in the beginning of our long awaited lift installation we now have a few bodies working around the flat pack mess created on Friday from the parts delivery. While our King of the read more...