Time To Embrace The New Hug

I’m a hugger. I think people fall into two camps when it comes to this oft times public and spontaneous show of affection – you’re either into it or you’re not. This human style of endearment suited me well for the first four and a half decades of my life – I certainly took both read more...

What, How, Where, Why of Limb Girdle Muscular Dystrophy

DEFINITION – 



Limb Girdle Muscular Dystrophy is the term given to a large group of rare degenerative muscle wasting conditions. There are many causes due to mutations in various genes and can be diagnosed with protein and genetic analysis. This condition does not seem to be sexist, bigoted or racist and affects people from all around read more...

Carer’s need caring too

My life would be so unimaginably ‘less than’ without my wonderful, supportive, unpaid carer AKA my husband, Gaz, (despite his frustrating and endearing husband like faults) since the symptoms of Limb Girdle Muscular Dystrophy have taken up an unwelcome residency in my body. 



And like millions of unpaid and loving carers around the world he read more...

It Takes a Village to Create a Quilt

Sometimes it takes a village to create…many outcomes. What does your village look like?. We all want to live independently and be self-reliant, and fortunately, most of us can forever. But even for the healthiest of us, the strong in mind and body, the determined, the driven and the in-between, we all rely on those read more...

LGMD, MD, MS, MND…huh??

Clearing up the acronym confusion If you have had the time to run over my previous musings you will know that I have a condition called Adult Onset Limb Girdle Muscular Dystrophy. LGMD is the preferred acronym for those of us that enjoy brevity in our writing (unlike what is shown in this sentence) and read more...