Home Modifications Complete, Part 2 – The Roll In Shower

We really can have an accessible bathroom without forsaking our taste. THE DECISION As I have alluded to before in my post To Wheel, Or Not To Wheel many people who have Limb Girdle Muscular Dystrophy (LGMD) experience genuine fear as a not so medical symptom. Fear and anxious anticipation as you try in vain read more...

Home Modifications Complete,Part 1 – The Home Lift

FINALLY You may recall last year reading my post, Ramping Up The Mods – It’s a Dogs Life , in which Gaz and I were modifying our home to enable me to retain as much accessibility as possible. Well six months and two seasons after completion I hereby announce the completion of  the installation of our residential read more...

Time To Embrace The New Hug

I’m a hugger. I think people fall into two camps when it comes to this oft times public and spontaneous show of affection – you’re either into it or you’re not. This human style of endearment suited me well for the first four and a half decades of my life – I certainly took both read more...

What, How, Where, Why of Limb Girdle Muscular Dystrophy

DEFINITION – 



Limb Girdle Muscular Dystrophy is the term given to a large group of rare degenerative muscle wasting conditions. There are many causes due to mutations in various genes and can be diagnosed with protein and genetic analysis. This condition does not seem to be sexist, bigoted or racist and affects people from all around read more...

Carer’s need caring too

My life would be so unimaginably ‘less than’ without my wonderful, supportive, unpaid carer AKA my husband, Gaz, (despite his frustrating and endearing husband like faults) since the symptoms of Limb Girdle Muscular Dystrophy have taken up an unwelcome residency in my body. 



And like millions of unpaid and loving carers around the world he read more...