Limb-Girdle Muscular Dystrophy and me

Disability posing as either mental or physical limitations is so much easier shared and supported by each other.

Life is definitely not how I planned it. My family and I have faced many changes, challenges and not so typical scenarios as I adapt to living with a rare, degenerative condition. Adult Onset Limb-Girdle Muscular Dystrophy. The onset of physical limitations that are changing my previously abled body to my disabled body.

I hope to reach out to those in similar situations to provide some degree of comfort and belonging for us all. To all our able-bodied brethren I hope to provide insight and understanding for unusual, rare and degenerative conditions such as Limb-Girdle Muscular Dystrophy.

Greater understanding is power .

Leanne’s Wheel Life is a platform to add to the growing voices of advocacy for inclusion, awareness and empathy towards everyone regardless of their individual circumstance.

Since my diagnosis of Adult-Onset Limb-Girdle Muscular Dystrophy (LGMD), I have become more reflective and observant of many aspects of life. More aware of things of that I simply took for granted or, honestly, just had never noticed or thought about.

I wish to share with you my real stories, reviews and other great resources. I would like us to share tips, tricks, new ideas and anecdotes of our collective life disability journey’s  – yours and mine.

Your participation in the disability and/ or LGMD narrative with your experiences, opinions and feedback will ensure that this is a truly valuable blog for us all.

Whether you have, know or love someone with physical limitations, or are experiencing a new chapter in your life for any unexpected reason – I would like to share this blog with you.

I invite you to subscribe anytime to receive each blog as I post and would love the chance for us to chat together about all these issues and more.

I look forward to our conversations,

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